One of the most challenging things about being the parent to a child with Down syndrome is the never-ending quest to change the World into a more accessible and nonjudgmental place. Through everyday situations, it often hits home just how far we as a Society still need to go.
The reality today is that prevailing negative attitudes, low expectations, discrimination and exclusion, ensure that people with Down syndrome are left behind. This occurs in Society, but also within the disability community and the Down syndrome community.
Of course, raising Awareness is just the first step in making the World a kinder, more inclusive place. There has been a huge movement in the last few years that is paving the way slowly but surely to this more accepting World. A number of viral videos, parent bloggers and social media accounts all help break down barriers.
There is a lack of understanding of the challenges and a failure to support them with the opportunities and tools needed to live fulfilling lives. Across areas such as personal development, personal relationships, education, healthcare, work and livelihood, recreation and leisure and participation in public life, people with Down syndrome must have opportunities, included on a full and equal basis with others
There are different considerations when it comes to raising a child with Down syndrome You have to be a fighter. It is a tough pill to swallow when people stare at you – at your child – with eyes filled with pity. You see it all: The side glances when you are out in a restaurant, the quick bow of the head when you look up to catch the stare.